Tag: Sickness
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The Complex Journeys of Life: A Tribute to My Sister
Life is filled with unexpected twists, and my relationship with my sister, Robin, was one of its most treasured yet complex paths. Robin was a fearless, quirky, and artistic spirit who never failed to brighten my world. One of my fondest memories was when she transformed my look with a bold hairstyle in 2001: deep…
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Thinking About Moving to Georgia? You Might Want to Think Twice!
Today’s post takes a detour from my usual topics, but it’s an issue that weighs heavily on my heart: the crumbling state of Georgia’s healthcare system and its devastating impact on those of us with rare diseases. Living with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder, means constantly navigating a complex web of medical…
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A True Blessing
Living with Dissociative Amnesia has brought many challenges, but amidst these challenges, there have been small blessings that my loving husband has given me. His thoughtful gestures, like buying me beautiful journals and nice pens over the years to help me keep track of my memories, have been a true blessing in my life. He…
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Finding Solace in Art: My Journey Between Georgia and Manhattan
Since 2020, my life has been a whirlwind of trips between Georgia and Manhattan. My husband, diagnosed with Fanconi Anemia, reached the point of aggressive leukemia, necessitating a life-saving bone marrow transplant. This relentless journey turned Manhattan into our home away from home, a city that became familiar yet challenging with its bustling streets and…
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The Healing Power of Art: A Caregiver’s Perspective
As a caregiver, I have witnessed firsthand the profound impact that art can have on mental health and well-being. The daily challenges of caring for loved ones, whether human or furry, can be overwhelming, leaving little room for self-care and emotional expression. That’s why the rising recognition of art therapy as a powerful tool for…
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The Art of Caring: Embracing Love and Compassion
Caring for our loved ones, whether they are human family members or beloved pets, is a journey that requires immense love, dedication, and sacrifice. It demands our time, emotional energy, and often stretches our financial resources. Yet, amidst the challenges and sacrifices, caregiving is also a profound act of love—one that strengthens bonds and enriches…
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Is it Leukemia or Fanconi Anemia?
While I am hoping that my friend Allison does not mind me sharing a photo of this lovely mug that she sent me. I will say that she has been a real Godsend to me with her blog and her wise counsel as well as her heart for helping caregivers deal with patients with rare…
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Unexpected Challenges & Blessings
Hello, dear readers! I apologize for not being able to post last week, but as you’ll soon learn, it’s been quite an eventful time for me. Let me take you through the ups and downs of my past week, which started with a restful Memorial weekend and ended with an unforeseen accident. The long weekend…
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Run the Race
Dear readers, I want to take a moment to share with you the story of my husband, and the incredible journey that he has been on over the past few years. It has been a difficult and challenging road, filled with more than its fair share of storms and obstacles. But through it all, my…
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Hope
As a little girl my Mom always used to tell me that “distance makes the heart grow fonder.” Well, for some …
Country Girl Gone City 