Tag: patient
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A Descent Into Darkness
In 2018, my husband Dexter nearly lost his life to sepsis, a vicious infection that consumed him after a bout of Salmonella poisoning. What looked like a simple sickness became a nightmare, and as his body collapsed under the weight of the infection, his soul slipped into a place darker than words can carry. I…
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Maintaining a Healthy Lifestyle While Still Enjoying Comfort Foods in the City
Over the last several years, my health has been slightly subpar due to tremendous amounts of stress—stress from work, everyday responsibilities, and most importantly, the heavy role of being a caregiver for my husband. That season took its toll on my body and mind in ways I could never have anticipated. By the time I…
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When Doctors Give Up — The Alarming State of Healthcare in the Southern U.S.
This morning I woke up with a heavy heart. My husband and I got ready, not for work or a pleasant outing, but to go and pray with a dear friend in the hospital. He’s been battling stage 4 liver and esophageal cancer since last year. Now, his doctors in Georgia have given up hope,…
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Understanding Fanconi Anemia: A Rare Genetic Disorder
Fanconi Anemia (FA) is a rare genetic disorder that affects the body’s ability to repair damaged DNA, leading to a host of serious health complications. It’s most commonly inherited and can be passed down if both parents carry a defective gene related to FA. The disease primarily targets the bone marrow, resulting in decreased production…
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Rare to Rare: Caregiving for a Rare as a Rare
Being a caregiver is a challenging role, but when you’re balancing your own chronic illness while caring for a spouse with another rare disease, the challenges intensify. I live with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder that leads to chronic pain and physical limitations, while my husband, Dexter, has Fanconi Anemia (FA), a…
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Thinking About Moving to Georgia? You Might Want to Think Twice!
Today’s post takes a detour from my usual topics, but it’s an issue that weighs heavily on my heart: the crumbling state of Georgia’s healthcare system and its devastating impact on those of us with rare diseases. Living with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder, means constantly navigating a complex web of medical…
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The Healing Power of Art: A Caregiver’s Perspective
As a caregiver, I have witnessed firsthand the profound impact that art can have on mental health and well-being. The daily challenges of caring for loved ones, whether human or furry, can be overwhelming, leaving little room for self-care and emotional expression. That’s why the rising recognition of art therapy as a powerful tool for…
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The Art of Caring: Embracing Love and Compassion
Caring for our loved ones, whether they are human family members or beloved pets, is a journey that requires immense love, dedication, and sacrifice. It demands our time, emotional energy, and often stretches our financial resources. Yet, amidst the challenges and sacrifices, caregiving is also a profound act of love—one that strengthens bonds and enriches…
Country Girl Gone City 