Tag: healthcare
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Understanding Fanconi Anemia: A Rare Genetic Disorder
Fanconi Anemia (FA) is a rare genetic disorder that affects the body’s ability to repair damaged DNA, leading to a host of serious health complications. It’s most commonly inherited and can be passed down if both parents carry a defective gene related to FA. The disease primarily targets the bone marrow, resulting in decreased production…
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Thinking About Moving to Georgia? You Might Want to Think Twice!
Today’s post takes a detour from my usual topics, but it’s an issue that weighs heavily on my heart: the crumbling state of Georgia’s healthcare system and its devastating impact on those of us with rare diseases. Living with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder, means constantly navigating a complex web of medical…
