Tag: doctors
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🌾 The Grace of Ordinary Days: Finding Gratitude in the Weight and Wonder of Life’s Storms

This past year has taught me more about thankfulness than perhaps any other season of my life. Not the easy kind of gratitude — the one that flows naturally when everything’s going right — but the kind that aches in your chest and trembles through your prayers. The kind that whispers, “Thank You, God,” even…
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Maintaining a Healthy Lifestyle While Still Enjoying Comfort Foods in the City

Over the last several years, my health has been slightly subpar due to tremendous amounts of stress—stress from work, everyday responsibilities, and most importantly, the heavy role of being a caregiver for my husband. That season took its toll on my body and mind in ways I could never have anticipated. By the time I…
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When Doctors Give Up — The Alarming State of Healthcare in the Southern U.S.

This morning I woke up with a heavy heart. My husband and I got ready, not for work or a pleasant outing, but to go and pray with a dear friend in the hospital. He’s been battling stage 4 liver and esophageal cancer since last year. Now, his doctors in Georgia have given up hope,…
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Living with Ehlers-Danlos Syndrome: Aging, Understanding, and Hope

When you live with Ehlers-Danlos Syndrome (EDS), every day can feel like a puzzle you weren’t given all the pieces to—especially when you’ve lived most of your life not knowing you even had it. For me, EDS isn’t just a diagnosis; it’s a life journey that has spanned four decades of unanswered questions, unexplained pain,…
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Understanding Fanconi Anemia: A Rare Genetic Disorder
Fanconi Anemia (FA) is a rare genetic disorder that affects the body’s ability to repair damaged DNA, leading to a host of serious health complications. It’s most commonly inherited and can be passed down if both parents carry a defective gene related to FA. The disease primarily targets the bone marrow, resulting in decreased production…
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Thinking About Moving to Georgia? You Might Want to Think Twice!
Today’s post takes a detour from my usual topics, but it’s an issue that weighs heavily on my heart: the crumbling state of Georgia’s healthcare system and its devastating impact on those of us with rare diseases. Living with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder, means constantly navigating a complex web of medical…
