Tag: Bone Marrow Transplant
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Deliverance & Authority in Christ: When God Brought Me Out
There was a time in my life when I truly hit rock bottom — when the walls of pain and exhaustion closed in so tight that I could hardly breathe. I had just lost my sister to a drug overdose, and my heart was already shattered. At the same time, I was caring for my…
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Caregiver Life 101
“Take care of yourself.” It’s the first thing people say when they find out you’re a caregiver—and quite honestly, it’s the last thing they help you understand. When my husband Dexter was diagnosed in 2019 with Fanconi Anemia, a rare and complicated genetic disorder that predisposes individuals to multiple types of cancer, I was thrown…
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Understanding Fanconi Anemia: A Rare Genetic Disorder
Fanconi Anemia (FA) is a rare genetic disorder that affects the body’s ability to repair damaged DNA, leading to a host of serious health complications. It’s most commonly inherited and can be passed down if both parents carry a defective gene related to FA. The disease primarily targets the bone marrow, resulting in decreased production…
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Rare to Rare: Caregiving for a Rare as a Rare
Being a caregiver is a challenging role, but when you’re balancing your own chronic illness while caring for a spouse with another rare disease, the challenges intensify. I live with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder that leads to chronic pain and physical limitations, while my husband, Dexter, has Fanconi Anemia (FA), a…
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Thinking About Moving to Georgia? You Might Want to Think Twice!
Today’s post takes a detour from my usual topics, but it’s an issue that weighs heavily on my heart: the crumbling state of Georgia’s healthcare system and its devastating impact on those of us with rare diseases. Living with Ehlers-Danlos Syndrome (EDS), a rare connective tissue disorder, means constantly navigating a complex web of medical…
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A True Blessing
Living with Dissociative Amnesia has brought many challenges, but amidst these challenges, there have been small blessings that my loving husband has given me. His thoughtful gestures, like buying me beautiful journals and nice pens over the years to help me keep track of my memories, have been a true blessing in my life. He…
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Finding Solace in Art: My Journey Between Georgia and Manhattan
Since 2020, my life has been a whirlwind of trips between Georgia and Manhattan. My husband, diagnosed with Fanconi Anemia, reached the point of aggressive leukemia, necessitating a life-saving bone marrow transplant. This relentless journey turned Manhattan into our home away from home, a city that became familiar yet challenging with its bustling streets and…
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The Healing Power of Art: A Caregiver’s Perspective
As a caregiver, I have witnessed firsthand the profound impact that art can have on mental health and well-being. The daily challenges of caring for loved ones, whether human or furry, can be overwhelming, leaving little room for self-care and emotional expression. That’s why the rising recognition of art therapy as a powerful tool for…
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Is it Leukemia or Fanconi Anemia?
While I am hoping that my friend Allison does not mind me sharing a photo of this lovely mug that she sent me. I will say that she has been a real Godsend to me with her blog and her wise counsel as well as her heart for helping caregivers deal with patients with rare…
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Run the Race
Dear readers, I want to take a moment to share with you the story of my husband, and the incredible journey that he has been on over the past few years. It has been a difficult and challenging road, filled with more than its fair share of storms and obstacles. But through it all, my…
Country Girl Gone City 